Amos Andoh is a Ghanaian living with Sickle Cell Disease (genotype SC), a condition that has shaped his personal journey and life’s mission.
Impact & Achievements
He grew up in Denkyira Asikuma in Ghana’s Central Region in a low-income household and was diagnosed with sickle cell disease at the age of six at Dunkwa Government Hospital after years of severe pain crises that sometimes left him unable to walk. During his childhood, awareness of the condition within his family was limited, and care was largely informal despite his recurring health challenges.
At one point, he was even told by a doctor that he might not live beyond the age of 25. Despite these difficulties, Amos developed a passion for journalism and worked with four radio stations before pursuing higher education at the University of Education, Winneba. His experience living with sickle cell disease ultimately shaped his purpose.
He is the founder of the Focus on Sickle Cell Foundation (FoSCel), a youth-led organization focused on awareness creation, genotype screening, and policy advocacy. Through FoSCel, he has contributed to successful advocacy that led to the inclusion of sickle cell treatment under Ghana’s National Health Insurance Scheme.
He also developed a Comic Strip Education Model to teach sickle cell awareness in schools, piloted in the Effutu Municipality with the Ghana Education Service. On June 19, 2025, he led the national World Sickle Cell Awareness Day celebration at the University of Education, Winneba, and continues to use major media platforms to promote genotype awareness.
In 2026, he presented a policy proposal to key national institutions calling for sickle cell education to be included in Ghana’s school curriculum and for the adoption of his education model nationwide. FoSCel has also launched a national genotype screening initiative to reach young people with education and testing. His mission is to reduce the number of children born with sickle cell disease in Ghana through awareness, screening, and policy change, with a long-term vision of expanding this impact across Africa.